A question of priorities

I do understand the reasoning behind visits by celebs like Scott Parker. No disrespect to him (he after all has taken time out of his own schedule to visit the hospital) but it is disappointing that the doctors who were guiding him round now have no time to answer some rather pressing questions we have about my son’s condition… Misplaced priorities perhaps?

England manager drops in

Roy Hosgson, manager of the England football team, came to the renal ward here at Great Ormond Street children’s hospital yesterday. He gave away a bunch of signed goodies and merchandise personalised for each child. Unlike some of the so called celebs who come for PR photo shoots that seem to be more about them than the kids, Hodgson was sensitive, asked intelligent questions, engaging and put the needs of kids first. A true gent

Make a Wish

The lovely people from the Make a Wish Foundation – the charity that grants wishes to children with life-threatening conditions – wrote to Phil today. They met him a couple of weeks ago and asked him what he wanted. He said a scooby doo cuddly toy and a fossil. In their letter they have offered him a shopping spree at Hamleys, the worlds largest toy shop, so that he can get those things and some…:) The look on his face was a joy to behold. Thank you Make a Wish for making his day

We have a date!

Yes we have finally been given a date for Phil’s transplant. The doctors say that there is a higher than average risk of rejection but feel that the odds are good enough to proceed. The Big Day has been set for 1.30pm GMT on Tuesday 19 February (that’s T-62 days)